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Nancy E. Frates

2016 Speaker

NANCY E. FRATES is the creator of the Ice Bucket Challenge. On March 13, 2011 Frates’ 27 year old son Peter was diagnosed with ALS, Lou Gehrig’s disease. Their world changed in a moment. In the past 3 years Frates has traveled and networked to the offices of CEO’s, Senators, Congressmen, top doctors and governmental authorities. She has testified in Washington D.C. to an FDA panel and has initiated and executed petitions regarding important issues affecting the ALS communities. In August 2014, Frates’ son Peter along with their family and supporters inspired the ALS Ice Bucket Challenge to go viral, raising $220 million for the ALS Association and its global partners. Frates, along with other family members runs the Pete Frates #3 Fund. Team Frate Train, as Pete’s supporters are known, have a website, sell Frate Train Gear and run marquee events for the fund, and support ALS organizations through their events. Frates is on the national board of trustees of the ALS Association, and is currently working with Collaboration for a Cure, a group of the top 20 ALS organizations who meet regularly to collaborate on issues affecting the disease community. The new hashtag #everyAugustuntilacure represents Nancy and the community’s commitment to their mission. @momfrates